The latest discussions, tips and advice from the Live Better With cancer community forum...

The Live Better With cancer community forum is an incredible family - every day you share emotional support and help each other with practical tips and advice. Here’s a roundup of some of the latest forum discussions...    


‘Not curable, but controllable’

This month we had a moving message from a new forum member, Selina, who has been diagnosed with cervical cancer and is going through chemo treatment. Her doctor told her it was not curable - but it is controllable.

Selina writes about the emotional challenges of being told your cancer cannot be cured - and about the mental adjustment required so you can understand that the disease can nonetheless be controlled, and life can be lived. For example, as part of her treatment she goes for a raiki massage at a hospice, and is disturbed by the idea of ‘palliative care’:

“I automatically thought of ‘no I’m dying’ -  but my consultants explained it means an incurable disease that needs medicine to keep it under control, no different to having diabetes where you have insulin to keep it under control. When he explained it that way to me I felt much better."

There are lots of supportive and wise comments from other forum members on the thread. Read it all here.


Radiotherapy soreness – what can help?

New member Pat asked if people could recommend products that helped with soreness after radiotherapy, as she was just about to undergo treatment. The community gave their recommendations, but what worked for you?

Also this month were questions about neuropathy from cancer drugs, tiredness caused by Pertuzumab Trastuzumab and Docetaxel, and financial help with travel costs. Can you help? Our community would love to hear your tips.


Ask the Experts: Shine Cancer Support

Shine Cancer Support are a charity dedicated to helping those diagnosed with cancer in their 20s, 30s and 40s. Whether you've been diagnosed with cancer or are caring for a loved one going through cancer at a young age, Shine are here to answer your questions on our Community forum. Drop by here and ask them anything you like now - they'll get back to you within a couple of days with a personal response!


And finally…

If you need a bit of cheering up, this thread contains a lovely poem about friendship, plus more cockle-warming stuff from the community including a pic of a rather happy dog...  


Find help and support, and share your story and tips - join the Live Better With Cancer community.